The Eaton family continues their quest for a cure
The Eaton family’s quest for solace has inspired a worldwide community for those dealing with Multiple Hereditary Exostoses (MHE), a rare genetic bone disease that their son Vincent was born with.
In 2005 they founded The MHE Research Foundation which hosts “Funtasia,” a bi-annual fundraiser focused on finding a cure and honoring those doctors and researchers working towards the cure.
“Hearing the words that your son has a RARE bone disease, was horrifying,” said Susan Eaton, Director of Fundraising and Family Advocate for the MHE Research Foundation, on her son Vincent’s diagnosis nearly 21 years ago. “It was so frustrating to know that your son has something so rare and to feel like you’re alone in something so devastating.”