Experimental drug gives Bay Ridge boy hope
Pietro Scarso, 6, has Duchenne muscular dystrophy
A Bay Ridge boy bravely battling a rare and deadly form of muscular dystrophy is finding new hope in an experimental drug he is taking as part of a clinical trial 3,000 miles from home.
Pietro Scarso, 6, suffers from Duchenne muscular dystrophy, a disease that affects a patient’s motor skills and hampers the ability to breathe. Pietro and his parents, Manni Scarso, a broker of private jet sales, and Dayna Scarso, a stay-at-home mom, are currently in California, where Pietro is receiving once-a-week infusions of Eteplirsen, a drug that has shown great promise in previous clinical trials.
Pietro is receiving the infusions at the University of California at Los Angeles (UCLA) Medical Center.