Pietro’s fight continues as new treatment cycle shows improvement
Six-year-old Pietro Scarso continues to fight, and with the help of new treatment, the Bay Ridge youngster has made significant strides that his family and supporters hope will help him knock out his illness for good.
For years, Pietro has battled Duchenne Muscular Dystrophy (DMD), an inherited disorder of progressive muscular weakness, typically in boys.
During a conference at John Paul Jones Park on Friday, December 4 to provide details about the second annual PJs for PJs, a pajama party event that is a community-wide fundraiser, the Scarso family — Pietro’s mother, Dayna, father, Manni and brother, Niko — joined State Senator Marty Golden in discussing Eteplirsen, a drug that Pietro has been taking since this past summer to treat DMD, and their efforts to get it approved by the Federal Drug Administration (FDA).